The dark side to special needs parenting (Firefly blog). Our children are who lights up the dark corners of our lives. The “dark things” (outside challenges) can add up – fighting for services, all the emails/phone calls to manage various aspects of your child’s affairs, finding therapists, funding/finances, the exhaustion of being your child’s secretary and advocate as well as their parent etc. I have sometimes semi-joked to my husband that I should keep a diary of all the “little things” that I do during a week – how much time I spend preparing for appointments and writing notes afterwards, or on the phone following up on people who were supposed to get back to me etc. But my children are worth it :).