You know you’re a SN parent when…

I can relate to so many items on this list!  Let’s see now…

  • downloaded several hundred apps in the App Store “just to try” (wish I could delete them from my account once we’ve decided they’re not suitable for us!)
  • knowing more government departments by their acronym than a public servant
  • being more accepting of other parenting styles and decisions
  • you can recite the paid parking prices at the hospital
  • you refuse to commit to anything, ever, unless you’re standing in front of the calendar
  • you use sign language across a crowded shopping centre
  • you celebrate what everyone else just takes for granted, because you know what an achievement it actually is

… and plenty more that I’m not willing to admit in public!!

Conversations around diagnosis

A conversation that comes up from time to time in ASD groups, is people venting their frustration about how others respond when they share news about an ASD diagnosis.  There are certain comments that seem to arise frequently, and I did smile at the answers that Leigh Forbes wrote to these in her article So, did you grow out of it? (Life on the Spectrum blog).

Here is a response I wrote to a similar conversation last week:

I don’t get too bothered by that comment [but he doesn’t look autistic]. When I think back to our pre-diagnosis days, when I knew very little about autism- if someone had told me that their child had autism, I wouldn’t have known how to respond. If it was someone close to me, I might have asked some questions about how they felt about it, and how it affected the child etc; but a stranger- no idea! When you think about it, it’s quite difficult to think of something to say on the spot, so I accept that they’re trying to acknowledge what I’ve shared, even if their response is a bit clumsy. If nothing else, it’s an opportunity to connect, and share a bit of autism awareness! 🙂

Newly diagnosed

A letter to the new autism parent.

Two sites that are great for information about autism and researching therapies are Raisingchildren.net and Therapy Connect.

Early intervention for Autism – 7 things I wish I had known.  Some helpful links and very real, practical advice for parents just starting the early intervention journey.

Autism – Parental Mental Health

I love that these posts keep it real – as much as we love our kids, managing life with Autism can be HARD!  These posts say it like it is, but in a humorous way.  I like humour.

I don’t care what causes Autism

My anxiety about my son’s ASD

Bears in the Park: Anxiety and the Autism Parent

Reasons not to mess with an Autism Mom – some counterarguments to the popular post

Things that are tiring about living with Autism

Groceries, stress and picky eaters

Let’s get real – and stop minimising our pain.

The Gospel and Autism – talks about despair and hope.

There are many parents who have been diagnosed with depression.  Still others report going through the stages of grief.  I found the following websites best explained my emotional state during the first year after diagnosis.

Chronic sorrow

Chronic sorrow and ongoing healing

Living with chronic sorrow

Autism Articles

Autism/SN articles I’ve enjoyed – they have made me laugh and/or think.

Autism – What you actually need to know – a very humorous look at Autism!

Autism in the media – News show snippets – anyone else get a little tired of hearing about the celebrity du jour who “got their child back” through ABA, then tipped a bucket of money into some venture that they’re using the media to promote?  Me too.

Six benefits to having an Autistic child – things you may not have thought about, that definitely are benefits!

The perks to having an Autistic teen – ditto above.

To the sibling of a child with special needs – a beautiful letter from a parent about how much they’re loved.

Aspie training 101 – this is a really clear explanation of the slower mental processing (executive functioning) that occurs with non-specific instructions.

Aspergers Superpowers – Rainman is Rainman.  Our kids have their own amazing narrow-interest specialisations.

Decoding the High Functioning label – very thoughtful article about why the high-functioning/low-functioning labels aren’t helpful.

The Great Disclosure Debate – some interesting points about whether to disclose your child’s diagnosis, and whom to.

How do I help my friend whose child has recently been diagnosed with ASD?

Mommy war zones – just the latest (Autism) variation of breast vs bottle wars.